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Cystic fibrosis (CF) is a fatal, genetic disease that affects approximately 30,000 children and adults in the U.S.
CF causes the body to produce abnormally thick, sticky mucus which clogs the lungs and leads to life-threatening infections. It also obstructs the pancreas, preventing enzymes from breaking down and digesting food.
The median life expectancy for a person with CF is now 36.8 years--an astonishing increase from just 4 years of age in 1960! There is currently no cure, but for every year of research, we gain a year of life expectancy!
Yes. 100% of the money you donate will go directly to the Cystic Fibrosis Foundation. 90% of all funds raised by the CF Foundation go for research. Research leads to a longer life. It is that simple. The median life expectancy for someone with CF has increased an astonishing 800% since 1960. And that is due to the Cystic Fibrosis Foundation and money raised by individuals and organizations. Since CF doesn’t affect enough people to make it profitable for drug companies to invest in treatments or a cure, the money must come from private sources.
The Cystic Fibrosis Foundation has been recognized repeatedly by SmartMoney, the magazine of The Wall Street Journal, as “one of 17 charities that won’t waste your money.”
Forbes magazine described it this way: “Most disease foundations are passive grant-givers. The Cystic Fibrosis Foundation is a very different beast--more like a biotech financier.” It is because of this unique approach and people like you, that such incredible progress has been made. You can be sure that your donation will make a difference.
In 1965, Mary G. Weiss became a volunteer for the CF Foundation after learning that her 3 children had the disease. She made call after call seeking financial support for research. Unbeknownst to her, Richard, her 4 year old son, overheard each call. After several minutes, he came into the room and said, “I know what you’re working for.” With some trepidation, because he was unaware of his diagnosis, Mary asked, “What am I working for, Richard?” “You are working for 65 Roses,” he answered.
Since then, “65 Roses” has been used by children of all ages to describe their disease. But making it easier to say doesn’t make it easier to live with.
With your help, we can make CF easier to live with and even find a cure.